After self diagnosing myself with Fluride Poisioning, I have set up this blog to record my health and share my research. I'm no doctor but i apply logic and reason to my findings and hope I may be of some help to others who find themselves battling against the odds like me.
Sunday, 29 July 2012
Thursday, 26 July 2012
Magnesium deficiency
Ok so after weeks of being in pain and my muscle not improving, have been looking for why. I now think I'm deficient in magnesium. Thus article says all about it.
Saturday, 14 July 2012
Friday, 13 July 2012
Excellent physio
On tuesday I had my first appointment with the nhs physio. To my surprise physio was actually wonderful! I was able to be up for the rest of the day!
She didn't do much, but was very good at her job, knew what she was talking about and seemed experienced. And most of all understood what I was going through. She gave me a few very light exercises(stretches) to do that seem so simple you wouldn't think there would be any benefit, but it's made a huge difference.
She's told me to exercise my right side, because even tho the pain is on the left the nerves are still connected so it will ease the pain.
She also explained all about the hot and cold thing which all makes sense. I pretty much knew everything just hadn't been able to put the sentence together in my mind for it to click into place. I had previously been so confused about whether to use hot or cold. Everybody said different things.
She said to put heat on to relax the muscles, before doing any movement. Once the muscles are relaxed to then do the stretches. Then afterwards to ease any inflammation to put the cold on it afterwards. Simple!
Anyway it really has worked wonders. It's so nice to just to be taken seriously that it has improved my mental state too.
I'm trying to take as little painkillers as possible. Feeling that they could be affecting my thyroid meds and mental state and therefore causing more pain, or at least the ability to cope with pain.
Anyway the great news is I haven't taken any painkillers since 11:30tuesday morning! It felt bad this morning when I woke up but I took my t3 as normal, put on some biofreeze gel and now it's just normal pain! :)))) I can cope with normal pain!
I've had a few other set backs in other areas today. Without going into detail my bowels have been playing up with hasn't been easy with a bad back! And I lost half of my vision! Something I've had before, normally leads to a migraine, but its very frustrating because i just cant read! I only see half a sentence! But it's all back to normal now! Hence me being able to write this.
The blog was actually written Tuesday but only just getting round to posting it today, Friday.
She didn't do much, but was very good at her job, knew what she was talking about and seemed experienced. And most of all understood what I was going through. She gave me a few very light exercises(stretches) to do that seem so simple you wouldn't think there would be any benefit, but it's made a huge difference.
She's told me to exercise my right side, because even tho the pain is on the left the nerves are still connected so it will ease the pain.
She also explained all about the hot and cold thing which all makes sense. I pretty much knew everything just hadn't been able to put the sentence together in my mind for it to click into place. I had previously been so confused about whether to use hot or cold. Everybody said different things.
She said to put heat on to relax the muscles, before doing any movement. Once the muscles are relaxed to then do the stretches. Then afterwards to ease any inflammation to put the cold on it afterwards. Simple!
Anyway it really has worked wonders. It's so nice to just to be taken seriously that it has improved my mental state too.
I'm trying to take as little painkillers as possible. Feeling that they could be affecting my thyroid meds and mental state and therefore causing more pain, or at least the ability to cope with pain.
Anyway the great news is I haven't taken any painkillers since 11:30tuesday morning! It felt bad this morning when I woke up but I took my t3 as normal, put on some biofreeze gel and now it's just normal pain! :)))) I can cope with normal pain!
I've had a few other set backs in other areas today. Without going into detail my bowels have been playing up with hasn't been easy with a bad back! And I lost half of my vision! Something I've had before, normally leads to a migraine, but its very frustrating because i just cant read! I only see half a sentence! But it's all back to normal now! Hence me being able to write this.
The blog was actually written Tuesday but only just getting round to posting it today, Friday.
Still in pain
Unfortunately my progress and well being has taken a turn for the worse again. I think I did too much on Wed, and buy wed night I really wasn't feeling good at all. I went to bed early, but by early hours of the morning I was in agony again. :(
I was very depressed and despondent at my backward steps. Which wasn't helped by work unsympathetically phoning up wanting to to know when i was coming back to work and that I was ok to do the shift this Sat (that had apparently been arranged in my absence and I actually had no idea about!) I was also told I was supposed to be working all day Monday. I told them no I couldn't do those shifts and would try to make it back for Wed.
But the way I'm feeling now, and with the way my progress is going, and the way they've treated me I think I might actually take the whole month off.
I just ended up spending the whole day in bed. I think it actually did me some good as altho I was stiff when I got up when Patrick got home, I was in less pain. However come this morning at 4 my leg was in agony again and I ended up taking the very strong painkillers. Which knocked me out until 6 when there were cats fighting outside so I took some diazepam in the end to help me sleep. I did end up getting some sleep, but I now think the visitors wore me out.
I've had a blinding headache all evening and I've no idea why. I also feel sick so I don't know if it's the beginning of a migraine. I don't know whether it's the painkillers I'm taking or if there is something else underlying that's stopping me getting better.
The back/ bottom pain has actually got a lot better. Inflammation is almost not existent, but the leg pain has got worse. And the thing that gets me is that there is no reason for it. If it is the muscle inflammation causing the nerve pain, as the muscles ease, surely so should the nerve? Not get worse. To me it makes no sense so it makes me question what I have.
All I know is I just feel rubbish physically and mentally. I'm even feverish at times. Today I was like an ice block, yesterday I was like furnace!
Going to try to get some sleep now. Patrick is still in the other room as he's dead on his feet, and I'm going to probably be very restless. But at least he has 2 days off now to recover.
Anyway I'll update you on my progress hopefully I'll have some good news to report soon.
I was very depressed and despondent at my backward steps. Which wasn't helped by work unsympathetically phoning up wanting to to know when i was coming back to work and that I was ok to do the shift this Sat (that had apparently been arranged in my absence and I actually had no idea about!) I was also told I was supposed to be working all day Monday. I told them no I couldn't do those shifts and would try to make it back for Wed.
But the way I'm feeling now, and with the way my progress is going, and the way they've treated me I think I might actually take the whole month off.
I just ended up spending the whole day in bed. I think it actually did me some good as altho I was stiff when I got up when Patrick got home, I was in less pain. However come this morning at 4 my leg was in agony again and I ended up taking the very strong painkillers. Which knocked me out until 6 when there were cats fighting outside so I took some diazepam in the end to help me sleep. I did end up getting some sleep, but I now think the visitors wore me out.
I've had a blinding headache all evening and I've no idea why. I also feel sick so I don't know if it's the beginning of a migraine. I don't know whether it's the painkillers I'm taking or if there is something else underlying that's stopping me getting better.
The back/ bottom pain has actually got a lot better. Inflammation is almost not existent, but the leg pain has got worse. And the thing that gets me is that there is no reason for it. If it is the muscle inflammation causing the nerve pain, as the muscles ease, surely so should the nerve? Not get worse. To me it makes no sense so it makes me question what I have.
All I know is I just feel rubbish physically and mentally. I'm even feverish at times. Today I was like an ice block, yesterday I was like furnace!
Going to try to get some sleep now. Patrick is still in the other room as he's dead on his feet, and I'm going to probably be very restless. But at least he has 2 days off now to recover.
Anyway I'll update you on my progress hopefully I'll have some good news to report soon.
Saturday, 7 July 2012
Update on Me, and my day in A&E!
Unfortunately life has got a bit out control recently. I found research and my health was being too much of an obsession, so I had to take a step back.
However I'm now lying in bed in agony after my back has failed me once again. I have terrible sciatica pain all down my left leg.
I did the hoovering Tuesday which seemed to start off the pain, although it had been niggling at me for quite a few weeks.
Then wednesday as I went downstairs I put the wrong foot first on the bottom. The pain shot through me like a lightening bolt, the poor cats thought I'd gone crazy as I screamed down the house. It went all down my left leg and when my foot went dead I knew I had to do something.
I've actually got quite a high threshold for pain believe it or not. As most of you can probably sympathise, when you go to to the doctors for years and get no where, you tend to get a thicker skin for pain after just being told to put up with it.
I rang a friend who convinced me I needed to go to A&E, so she took me. To my surprise I was actually seen quite quickly by a nurse, but then I spent the rest of the day waiting for doctors, which couldn't suggest anything except more pain killers.
I must have taken everything possible codeine, diclofenac, diazepam, tymerol (no idea how to spell) i think there were a couple more that i cant remember, plus a non oral one as well! But I didn't care I just wanted the pain to go, but it didn't.
They then gave me morphine, which took about 2 hours to kick in. By which point they had decided to get the physio to see me. Of course I was doped up to the nines, and they were trying to get me to walk. I almost fainted, due to the heat of the tiny room i was in, when i first stood up. But with the physios persistence this time I felt the morphine had worked so could walk a little.
So then basically I got discharged with nobody actually doing anything. Nobody even had a look a my back, no X-rays were taken because apparently they wouldn't have shown up anything, the doctor said an MRI scan was needed but I had to wait to be referred to by my own gp! The physios said they wouldn't touch me as I was in too much pain! And no one at all even asked if I have any other medical conditions or if I'm on any other medication so god knows how its affected my t3 treatment.
So I got no where, some part of me wishes I'd stayed at home. Because after my little bit of movement the morphine properly kicked in and was violently sick for hours. Of course I had not eaten all day so that probably hadn't helped.
My future mother in law booked an oestopath to come round the next day, which did help a lot, especially with the leg pain but the back pain was still terrible. He was do much more help than the hospital tho and explained I had trapped my sciatic nerve due to my muscles in my lower back tensing. I needed to ice it until the inflammation reduced.
At present it has eased slightly, but I'm still taking quite a few painkillers so its hard to know if it's working or not. Sitting is still a definite no no, but I can stand fairly comfortably (once I'm up that is) It just wears you out standing all the time. Hence why I need a lie down in the day to rest.
In other relatively good but frustrating news my doc has agreed to continue my t3 treatment for another 4months. Obviously that's good, however the stupid thing is he still doesn't agreed that I've got a thyroid problem!!! Not that I'm complaining, I am grateful for the tablets, I really don't know where I'd be without them, it's just I don't understand his logic.
Last time I went to the pharmacy, the pharmacist told me I shouldn't be paying for my prescription as its thyroid medication, and to ask my gp for a form to get it free.
So I did this, and he laughed in my face! To be honest I just don't think he knew what to say. He stuttered that it's only free for people with hypothyroidism. Which apparently I don't have, even tho I have all the classic symptoms AND I feel better on thyroid meds?! Surely if I wasn't hypothyroid I would feel worse on extra thyroid hormones??
Obviously not it would appear! By this point he had put my back up so I told him "that I was not classified hypothyroid in numerical terms, but I believed I had hypothyroidism." to which he said nothing! So just thanked my lucky stars for the prescription.
The other update I have is on my boyfriend who I believe had adrenal problems. He luckily had managed to get a visit to the endo, she seemed very good. Took lots of blood before hand so we could discuss results when we were there. She said his cortisol levels were fine, don't know what as I was too scared to ask after last time at the doctors. But the only thing that showed up was low vit D and Calcium. To be honest I wasn't surprised by this, as the week before the appointment the weather had been glorious and I had noticed a vast improvement in him. She said she would write to his gp to give him a script for vit d and cal, and a referral to the ent for his dizziness.That was a month ago. We got a letter from his doctors surgery this week. He'd already booked and had an appointment last week! Shows how efficient our surgery is! And in the appointment the doctor didn't even mention the ENT referral! Unfortunately my boyfriend didn't realise the referral would have to come from the gp so never asked about it. So I spent this week chasing up about the referal cos he's now too stressed to do it and is almost giving up.
But at least we got the script for the vit d and cal right? Well that was a joke. I told him to ask for the highest dose possible thinking 25,000 or 50,000 IU. But nope he got a script for 400iu!!!! I was absolutely disgusted. How they could say that's the highest dose when I know somebody on here posted a question and said her strength for the very same tablets (Adcel I think) was 800iu! Even that I don't think is really going to touch a deficiency, maintenance dose maybe, but not for somebody who is 33 and needs to be a min of 75. Fuming I was! So anyway he's taking his 400 a day until the 5000 I've just ordered off amazon turn up!
Sorry to have gone on for sooo long, but I must admit writing this has taken my mind off the pain.
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